Therapeutic Use Of Fish Oil for Apraxia, Autism and Other Communication Impairments

“Every so often, scientists really do discover a substance of transformative power, one with the ability to cure the previously incurable and improve the quality of life for the rest of us. Omega-3 fatty acids — a component of simple fish oil, once so prevalent in our diet but now largely absent — could be such a substance.”~ Harvard Medical School doctor, Andrew Stoll, MD

Therapeutic Use Of Fish oils for apraxia, autism etc.

Basic information about fish oil supplementation for children with speech delays, impairments, or multifaceted communication impairments

What is the best fish oil for my baby or child?

My son Tanner didn’t like fish oils but they helped him greatly

The confusion is more the brand names than the formulas. In actuality there really is no such thing as a “children’s fish oil” as fish oil is fish oil. However fish oils can be marketed to appear to be just for children by making cuter bottles, fun flavorings, smaller capsules. In general you will find the “Jr” marketed fish oils to be about twice as expensive because they are typically half dosage for around the same cost.

Most parents squeeze the oil out of the capsule anyway -so if anything a larger capsule would be easier for a child.  The one time you may want to consider paying twice as much for fish oil with the “Jr” marketed fish oil capsules is when you want to teach your older child to swallow the fish oils capsules.

Fish oils are also known by the following names

  • Essential Fatty Acids or EFAs
  • Polyunsaturated Fatty Acids or PUFAs
  • Long-Chain Polyunsaturated Fatty Acids or LCPs
  • Omega 3s or O3

Tanner Geng who’s been on fish oils since 2 year’s old

Dr. Stordy and Malcolm Nicholl co authored The LCP Solution and my son Tanner’s story is the first one in the book under apraxia “The Lellow Breakthrough

Malcolm was one of my co authors of the book The Late Talker as well. The LCP Solution or the Omega 3 Connection are both excellent books for general info about why EFAs (or LCPs/PUFAs/stinky fish oils, are essential to our bodies, have to be consumed, but are virtually lacking in our diets today.

The Following Links Will Provide More Information

Two options for those that just can’t get fish oils into their child

  1. NNAlgae Omega- EPA and DHA from Algae
  2. NNOmega 3 Fishies

What improvements should I look for when I start my child on fish oils?

Since I receive lots of calls about this -I wanted to list the most common changes in an apraxic or other speech disordered child on EFAs from what I’ve read and heard and seen. Most of the following are for children that were essentially nonverbal previous to supplementation.

  1. Increase in babbling or attempts at sounds.
  2. Increase in imitation.

Changes also can be looked for in (what you see as positive or negative)

  • sleep
  • attention
  • appetite
  • focus
  • behavior
  • stools

Next will come a breakthrough of something you were probably working on for a bit -so you will be excited but will think “Well -I don’t want to get my hopes up we were working on that for awhile now -maybe it’s just a coincidence” However after the second or third surge in a short period of time -and then another – you are pretty sure things are different and it’s at this point the professionals and the rest of the family and your friends are noticing it too – maybe about two to three weeks now.

OK -the next stage is pure elation and hope -you see the light and no longer feel as desperate and want to share this new information with everyone and anyone. As the months go by and your child continues to progress at a much more rapid rate -you may even start to doubt the original diagnosis -especially if you started EFA supplementation at two -and perhaps the SLP that diagnosed the apraxia who also was at first excited is starting to second guess if the original diagnosis was correct as well.

Unless you have to stop the NNProEFA 3.6.9. (or other Essential Fatty Acids) and literally have the chance to see the regression of acquired speech and language skills, attempts, and changes in behavior like we did with Tanner (and/or have a chance to again witness the second surge when your child is put back on the EFAs) -that doubt will probably remain somewhere in your mind and in others around your child. So the “I told you that he would start talking when he was ready” comments should be expected of course.

The child on NNProEFA 3.6.9. or some other EFA formula’s like it no longer fits the criteria of the classic definition of apraxia -and yet doesn’t fit the classic perception of what a late talker is either. The brain responds to multiple stimuli and even if children on fish oil no longer present with the original diagnosis, they will still require appropriate speech therapy. And while most of this information is focused on speech and communication impairments, fish oils are beneficial for numerous conditions from cardiovascular to psychological conditions as they contain the essential fatty acids. With a slightly different formula of fish oils containing high EPA to DHA and an even smaller amount of GLA, the fish oils are also extremely beneficial for those diagnosed with ADHD. There are numerous cases of children that due to the effectiveness of fish oils, were kept off prescribed drugs for ADHD with known serious side effects.

What Percentage Of Children Have Benefits With Fish Oils?

According to researcher Dr. Jacqueline Stordy, and author of The LCP Solution, who presented at a conference at the UNC School of Medicine Chapel Hill on fish oils and apraxia, the results are around 80 percent success rate with the right formula.  Formula is key for success.

Me and my son Tanner when he was younger

We hope to raise monies for clinical research to validate the importance of Omega 3 and 6 fatty acids Until there is research, share all with your child’s ped -many neurologists today are more knowledgeable about the importance of EFAs even if your pediatrician still has little to share in this area.

While looking into fish oils which contain essential fatty acids, you may also want to explore with your child’s doctor essential amino acids and nutrients through diet as well. We have had incredible success with essential nutrients and there is extensive and growing research on the importance of these essential nutrients. Essential nutrients are needed daily but the body can’t produce them so they need to be consumed in the diet. The problem is many diets today are poor, and add to that compromised metabolic systems. The purest form of supplementation is through food.

Essential fatty acids, essential amino acids and essential nutrients may be confusing…but good news is that we don’t have to understand everything about good nutrition to see it have positive effects!

Email us or provide feedback below if you have any questions or comments!

Why is nutrition important? A talk by Dr. Martha Herbert

LISA GENG

Author and Executive Director at The Cherab Foundation
Lisa Geng got her start as a designer, patented inventor,and creator in the fashion, toy, and film industries, but after the early diagnosis of her young children she entered the world of nonprofit, pilot studies, and advocacy. As the mother of two “late talkers,” she is the founder and president of the nonprofit CHERAB Foundation,co-author of the acclaimed book, The Late Talker, (St Martin’s Press 2003), and is instrumental in the development of IQed, a whole food nutrition meal replacement. Lisacurrently serves as a parent advocate on an AAN board for vaccines, and is a member of CUE through Cochrane US. Lisa is currently working on a second book, The Late Talker Grows Up and serves as a Late Talkers, Silent Voices executive producer. She lives on the Treasure Coast of Florida.

149 Comments on “Therapeutic Use Of Fish Oil for Apraxia, Autism and Other Communication Impairments

  1. Hi Lisa.
    Hope you can help.
    My son is 6, and has Developmental Language Disorder (formerly known as Specific language impairment) and we were using the Nordic Naturals pro-Efa capsules for some time and noticed quite a change in his attention span, which in turn helped him to be able work on his speech with his SLT and focus better in school.
    However I now seem to be unable to get hold of this capsules and have looked everywhere. I even e-mailed the company to find out if it had been re-branded or if they could recommend an equivalent but I didn’t hear back.
    We have been using another fish oil however i doubt that it is of the quality we had with the Nordic naturals. Are there any that you would recommend to use which are the equivalent to the NN pro-efa?
    We are in the U.K.

    Thank you!

    Victoria.

    • Hi Victoria- you are probably best off with the name specific language impairment and ASHA still uses that as your son is 6 years old and not good to have the word ‘developmental’ or ‘childhood’ in front of the diagnosis name as the impairment may follow him through his school career and in about 4 years those words start to take on other meanings. Most that use the NN ProEFA 369 in the Cherab group have used it to help with speech (expressive) and while it may help with language too, most of our experience has been with apraxia which is an expressive (speech) disorder.http://pursuitofresearch.org/2016/09/12/the-first-scientific-conference-on-therapy-for-verbal-apraxiadyspraxia/ The NN ProEFA 369 is still available but as I have on this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ you can only find it through healthcare providers or online at sites like http:/www.speech411.com You can get the exact same formula at your store through the commercial line and it will be called Nordic Naturals (NN) complete Omega- and it will contain borage seed oil just like the NN ProEFA 369. The only reason most of us get the professional line is because you get more capsules for around the same cost. But the commercial line is great for instant gratification or when you run out

      Oh no after reading all of that saw you are in the UK -nevermind you should just get the EyeQ which is manufactured in the UK and from what I’ve heard from parents that have used both EyeQ and NN ProEFA 369 they are comparable

      Hope that helps!

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

    • Nordic Naturals – liquid oil I have been giving to my son as well, I notice a huge improvement
      good luck

    • Nordic Naturals is sold at Sprout’s. I thought you could get on Amazon as well, but not positive. I also like Wiley’s fish oil, maybe even better than Nordic.

      • Nancy, there is a difference between the commercial and professional line for Nordic Naturals and stores are only allowed to carry the commercial line as I have here http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ With fish oils as I have on that page it’s not name-brand that matters but formula, quality of the oil, and then dosage.

        Nordic naturals is very strict with quality and who has their professional license to be a distributor. I recently spoke to someone in the professional division about their products selling on Amazon and they informed me to share with our group not to purchase their products on Amazon as nobody is authorized to sell their products on Amazon or eBay. It’s come to their attention in some of the products they purchased that some of the bottles contained cotton. Nordic Naturals doesn’t put cotton into their fish oil bottles so that is frightening as that would mean some of the fish oils being sold on Amazon appear to have been tampered so you don’t know unless it’s purchased from an authorized distributor.

        Lisa Geng
        President CHERAB Foundation
        cherab.org
        Communication Help, Education, Research, Apraxia Base
        Conceptualist for IQed “Approved for the Feingold Diet”
        getIQed.com
        772-335-5135
        “Help give our cherubs a smile and a voice”

  2. Hi Lisa.
    Hope you can help.
    My son is 6, and has Developmental Language Disorder (formerly known as Specific language impairment) and we were using the Nordic Naturals pro-Efa capsules for some time and noticed quite a change in his attention span, which in turn helped him to be able work on his speech with his SLT and focus better in school.
    However I now seem to be unable to get hold of this capsules and have looked everywhere. I even e-mailed the company to find out if it had been re-branded or if they could recommend an equivalent but I didn’t hear back.
    We have been using another fish oil however i doubt that it is of the quality we had with the Nordic naturals. Are there any that you would recommend to use which are the equivalent to the NN pro-efa?
    We are in the U.K.

    Thank you!

    Victoria.

    • I think I just answered this but if I didn’t let me know!

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  3. Thanks Lisa for your quick reply. We’ve temporarily removed blueberries from our son’s diet — we read that that could be the cause of what we were seeing regarding his stool — and he’s now back to taking the 1 capsule of NNProEFA 3.6.9 for the past four days. And everything is normal with his stool now.

    It was likely just the blueberries. We’ll try not to let him eat quite so many (they’re his favorite) 🙂

    • Now I can’t recall what happened to his stools -but I wouldn’t limit blueberries unless he’s allergic as they provide some healthy nutrients. Perhaps just introduce them slowly and only start with a few and gradually increase them? I use the Nutrabullet a lot to make smoothies and blueberries are great in there too 😀 how is it going with the fish oils?

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  4. Hi Lisa
    I stay in the UK, my son is 5years and non verbal, I can access the liquid fish oils, and he doesn’t mind with medication. Please what dosage can I administer with the liquid form of fish oils, and how do I up it? Thank you

    • Hi Onyeka,

      On this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ I explain that the formula called EyeQ which is manufactured in the UK is supposed to be a high quality fish oil, many have found it comparable to the NN ProEFA 369. Try that and let me know!

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  5. Wow so much info on here that I am just hearing about but glad I discovered, thank you for this! My son is going to be 5 yrs old, non verbal ASD, no apraxia. Would I just then need to give him the Pro EFA only? And if so how many daily do you recommended?

    • Hi Jose,

      The formula I share on this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ has been successful for kids with autism and apraxia. For ADHD I recommend even higher EPA and have a page on that too. You absolutely can start with one capsule of NN ProEFA 369. From what I’ve seen personally and through the group dosage isn’t as important in regards to fish oils as formula (and quality of the oils) so if your child is a responder you should know even with just the one capsule within a day to three weeks in most cases (most often a week)

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  6. Hi Lisa,
    My son will be 4 next month, he has very little speech, he was diagnosed with ASD, please, what can I do to help with him talk more? I’m very confused about the omega fatty acids, he’s extremely picky with food and won’t be able to swallow capsules.
    Thank you.

  7. Hi Lisa,

    My child is five years old and is having delayed speech, he has’nt started speaking words.

    Currently, I could find the below recommended EFA and EPA fish oils:

    Complete Omega:

    EPA:

    Can you please review and confirm if these are of the right specification?

    Also, are there any more economical options / recommendation in India, like if something below can be substituted:

    • As I have on this page I recommend the professional over the commercial line if you are looking for more economical http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      See if you can find a fish oil in a store near you in India that is higher in EPA to DHA which are both Omega 3s. I can’t see the label on the Amway one you shared. I do recommend a bit of GLA which is an Omega 6 from either primrose or borage seed oil but you can always add that to a pure Omega 3 fish oil if you don’t have a good blend near you. Are you a member of the Cherab group on fb at http://www.apraxia.org ? There are a number of parents in the group from India and can check to see which brands they use. Some ship in the NN ProEFA 369 from http://www.speech411.com

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  8. Hi
    My daughter is 20 months old n her speech is delayed. I wanna know tat, giving her fish oil ll improve her speech, if yes suggest me which brand to give her n how much dose..
    Thanks in advance.

  9. Hi Lisa, I have a 3 years 5 month daughter who is full of her own language but unfortunately we don’t understand her. She is a twin, was diagnosed incorrect at age 2 with autism … we were told severe low functioning. Anyone who has worked with her said no way it’s not. Many speech therapist and early intervention specialist… said it wasn’t autism. So, we have a diagnosis and unfortunately not accurate. Many have said they belive it is apraxia. I started her on NN proefa 3.6.9 1 tsp liquid but I’m reading here you also recommend proepa. She has been taking it 2 weeks and we as well as preschool teachers have noted much improvement…like much more clarity to her jabber. She is extremely social loves to sing etc. Just can’t make a thing out..except for the tune! Anyways before we add to her 3.6.9 I wanted to ask the expert! She will not swallow pills but is taking lemon liquid 5 ml. Pretty well. Should we add epa? And if so how much? Liquid? Regards. Kim …

  10. Hi Lisa,

    I have a 4 year old that says some words, but hardly ever uses sentences. She repeats a lot of words and sometime babbles. She also has a hard time answering questions. I had her evaluated and was told that she is language impaired. I recently had her start language therapy sessions weekly through the school system. This week I was notified by her private school that they don’t want her to return for the next school year due to her lack of speech. This is both heartbreaking and frustrating on many levels. After doing research online I came across your website. I feel as if there’s hope. I’d like to order the fish oil ASAP. Should I start her on two of the ProEFA 3-6-9 and one ProEPA? Or should I only do the ProEFA 3-6-9? Also, I stay in the treasure coast area. Are you able to recommend a good language therapist and preschool that could help my daughter?

    • Tiffany what country are you located in? If in the US she’s entitled by federal law to a free and appropriate public education in the least restrictive environment. Where would you say she fell on this matrix? http://pursuitofresearch.org/2013/03/22/speech-therapy-matrix/

      As she’s only 4 years old I would also seek second opinions on the diagnosis of language impairment as that is the assumption when a child isn’t talking that they don’t understand. But if your child isn’t talking say due to apraxia http://cherabfoundation.org//2006/parent-friendly-signs-of-verbal-apraxia/ that is an expressive disorder of speech -not a language disorder. Apraxia or other impairments of speech can create lags in language due to the delays in speaking but that’s different than an impairment.

      is your child showing any signs of frustration in not being able to communicate? Please think of joining our support group on facebook at http://www.apraxia.org We have members that are teachers, SLPs, special education attorneys, doctors, as well as parents like me. And remember ability to think has nothing to do with ability to learn http://pursuitofresearch.org/2016/09/08/study-cognitive-ability-can-far-exceed-verbal-ability/

      I’d love to help so please update me. About fish oils -have the dosage here http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ but I typically recommend just starting with one capsule of the NN proEFA 369. If she’s a responder -you’ll know! And then increase as I have on the page. I also recommend stopping them for a week or at least a weekend once you start to observe if there is a regression off -and then starting again. Fish oils are taken for granted too much because they are so easy -but that’s how they gain respect! 😀

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  11. Hi, My 4 year old ASD son who has a severe speech delay currently takes Balanced Essentials Liquid Vitamins which contains Omega 3, 6 and 9 via 3mg Flax seed oil. He is the pickiest eater but will happily take the Liquid vitamin which is great for us so hesitant to change to something else he may not.

    Has anyone combined flax seed oil with a Fish Oil supplement? I’m not sure if it would overdose my son if I did, but not sure he is getting the amount of Omega that would help him? Thanks for any advice.

    • You can try combining flaxseed oil with the fish oil Sarah. I’m the mom behind IQed and I have an ALA Omega 3 in there too for healthy fats- and you can try that for a picky eater as well https://getiqed.com/pages/picky-eater-tips That aside believe you’ll be very impressed with the nutritional profile https://getiqed.com/pages/nutritional-facts

      Hope that helps!

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  12. Hello Lisa,
    My son is three and a half and diagnosed with ASD and receptive expressive language disorder. He’s on liquid1 tsp per day Children’s DHA by Nordic Naturals. After reading the article I start to realize this might be not the best choice and dosage for his needs. Please let me know what’s opinion and if you think I should replace the DHA or to add on EPA and EFA.
    Thank you!

    • Hi Tia,

      The Nordic Naturals Children’s DHA is just cod liver oil. Please read the dosage page here http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ because most of us found formulas higher in EPA to DHA to be better. Also for some reason I found the Omega 6 oil GLA to be important too for some reason. I know fish oils can be confusing -but good news is they are all healthy even if it’s the “wrong” formula! Let me know if you have questions still.

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

      • Hi Lisa,
        Thank you for your reply! My son has been on 2 capsules pro EFA and 1 capsule pro EPA for a month now but I see minimal progress if any. I plan on starting a heavy metal detox in about a month but have to supplement accordingly including 400-800 IU Vit. E per day. I remember reading( don’t remember where) that I shouldn’t be giving Vit. E while on the current proEFA and pro EPA schedule. Please let me know if that’s correct and why so. I’m strongly decided to start the chelation and when supplementing with the suggested dose Vit. E per day what do you feel is the appropriate fish oil dose and which one?( dha, gla, EPA or EFA)
        Thank you!
        Tia

      • Please do a lot of research before you proceed with either high dosage vitamin e or heavy metal detox -both of which have potential side effects that can be far worse/more severe than a speech delay…which at 3 years old ‘may’ still just be developmental. We had horrific side effects in our group -my son Tanner included with the theory of vitamin e -and that’s all it is; theory. There are no studies at all -just one paper which was based on a vague survey- and me and 2 other moderators from the Cherab Foundation were the parents who collected the responses and not quite sure of how the paper came to the conclusion it did. We were using 200/200 alpha gamma tocopherol in the group and had no side effects with that -and yes some including me did note some progress. But then as you are going to try with your 3 year old and taking him to double and almost triple his upper tolerable levels of vitamin e (which is a fat soluble vitamin) b I wasn’t aware at that that even at 400 IU from a meta analysis which is one of the highest forms of evidence in research there is an increased risk of mortality https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4030744/ and there is also an increased risk of prostate cancer at just 400 IU a day of vitamin e http://www.harvardprostateknowledge.org/vitamin-e-may-indeed-increase-the-risk-of-prostate-cancer

        There are zero studies I’m aware of with children and vitamin e so who knows what a mega dosage will do to a child’s internal organs and health over a few weeks, months, years. I can tell you within days (DAYS) these were some of the side effects I and others saw on one formula out there that has mega vitamin e https://www.truthinadvertising.org/speak/ Please be very skeptical and question everything. Don’t jump -don’t listen to me or anyone else (well except about being skeptical and questioning everything) You do not want to have to go through the guilt of knowing that you are responsible personally for in essence poisoning your own child. That is what hypervitaminosis is -vitamin poisoning. My point is that any drug -or supplement has a risk of side effects.

        This is one of the reasons I now focus on food. The one exception is fish oils which have tens of thousands of studies to validate their safety and health benefits for humans of all ages. So even if they don’t “work” they are still healthy. Please let me know if your child has a diagnosis because if he doesn’t -it’s still possible it’s just a developmental lag which 75 percent of late talkers have just that. If it is just a developmental lag -fish oils and therapy may help, but they may not. With a developmental lag a child will start talking at some point without any help -just later.

        Saying that -whomever told you that you can’t use fish oils and vitamin e together is pulling wool over your eyes. Just about all fish oils contain alpha tocopherol as it’s put in there in small amounts (perhaps around 15 IU per capsule) to help with stability of the oils. And yes when we used the 200/200 alpha gamma that was added to the fish oil regimen. I don’t know of one parent who used vitamin e alone. Not one -and I’ve been outreaching for 18 years. Not saying it doesn’t exist as only around 80 percent of kids are responders to the fish oils with the right formula leaving around 20 percent who are not responders.

        My advice is to stop the fish oils totally and observe. Do you see any regression in any area. Then start them again and observe -do you note any progress? If no regression off and no surge when starting again your child is probably not a repo9nder.

        Even if your child isn’t a responder there are so many other strategies out there that are benign between fish oils and heavy metal detox -which can come with a side effect of death http://scienceblogs.com/insolence/2006/11/07/the-complaint-against-dr-roy-kerry-kille/ (that’s about a child who died from an accident with chelation therapy) And I get why some parents who have children with severe autism who tried so many other things will be willing to go to that extreme…but again don’t you just have a 3 year old with an undiagnosed speech delay?

        I’d be willing to speak with you -but if not -either way, in addition to seeking accurate (if any) diagnosis to secure appropriate therapies and placement, seek out an integrative medical doctor who has a focus on nutrition- ayurveda which is the world’s oldest medicine. Even if nutrition and Ayurveda don’t help it’s healthy and can’t hurt. Again would be willing to speak to you.

        Lisa Geng
        President CHERAB Foundation
        Communication Help, Education, Research, Apraxia Base
        Conceptualist for IQed “Approved for the Feingold Diet”
        772-335-5135
        “Help give our cherubs a smile and a voice”

  13. Hi, Lisa: I just got about the information about the fish oil can help the child with speech and the bain from my son’s case manager from the annual visit and searched on line and got lot helpful information here. My 7 years old boy can’t not talk now. But he can get mama and some sound and got the development delay diagnosis when he was 2. But didn’t get the test of autism. After I read your posts and I decided try your suggestion fish oil to him. I ordered on line for NNProefa 3-6-9 and NNProefa and before I last check out it showed up a notice said these products contain the warning of Ca pro 65 said these products contain chemical known to ca pro 65 cause cancer and birth defects or other reproductive harms. I am not sure why ca has this warning and make me concerned about these products. Any explains for this warning or these products safety?
    Ps I live on California and not sure other states have this kind warning for these products.

    Thank you very much!

    • Hi Poise,

      I don’t see if on my bottle but I’m in Florida. On the website for Nordic Naturals it says “All fish oil‚ regardless of the kind of manufacturing process used‚ needs to be processed in order to remove contaminants and pass minimum laws and standards (such as California’s Proposition 65). This process always requires the use of heat.” https://www.nordicnaturals.com/en/FAQs_portal/FAQs_Group_All/638 Please contact Nordic Naturals and ask them. There are numerous families using fish oils from California and you are the first ever to bring this up. Unless I’m misunderstanding your question?

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  14. Lisa,
    I already got the Nordic Naturals Baby DHA for my 24 month old son who has a speech delay. Will this work for now or do I need to purchase another product fromanagement Nordic Naturals?

    • Hi MG,

      The Nordic Naturals Children’s DHA is just cod liver oil. Please read the dosage page here http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ because most of us found formulas higher in EPA to DHA to be better. Also for some reason I found the Omega 6 oil GLA to be important too for some reason. I know fish oils can be confusing -but good news is they are all healthy even if it’s the “wrong” formula! Let me know if you have questions still.

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  15. My 7 year old son has severe Apraxia. His verbal skills are equivalent to a 2-3 year old. He attends speech therapy twice a week for about 3 years now and is progressing very slowly. I would like to find out more about the recommended dosage for him and also to see if you know of any additional benefits of taking Vitamin E along with the Fish oil for speech apraxia.

    • Hi Jodi,

      I know you are asking about fish oils but first wanted to address what is going on with progress even with just therapy. The general rule of thumb is to reevaluate therapy, therapist, and/or diagnosis. Where would you say your child fell on this matrix? http://pursuitofresearch.org/2013/03/22/speech-therapy-matrix/ Based on what you wrote I’d say severe to profound? Has your son been to either a pediatric neurologist or developmental pediatrician to confirm or rule out soft signs http://pursuitofresearch.org/2014/07/29/parent-friendly-soft-signs/ Apraxia today is rarely just a speech impairment and rarely just a motor planning impairment. You want to find an SLP who is experienced in a few methods to help because for example it’s not unusual for a child to have apraxia with coexisting dysarthria. OT can be key as well. Don’t hesitate to seek a second opinion with another SLP and replacing an SLP that you’ve been using if not seeing progress. Here are a few ways to secure low cost therapy http://pursuitofresearch.org/2016/05/31/5-ways-to-get-free-or-affordable-speech-therapy/

      I do not at all recommend taking vitamin e along with fish oils. There is no evidence to support it, and instead, we’ve had a number of reported side effects from vitamin e supplementation -many fish oils contain a nominal amount of alpha tocopherol for stability (maybe 15 IU per capsule) and that’s OK. Avoid any fish oils mixed with high levels of vitamin e or supplementing it separately.

      The dosage of EPA, DHA and GLA I have on this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      Lisa Geng

      Lisa Geng
      President CHERAB Foundation
      cherab.org
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      getIQed.com
      772-335-5135
      “Help give our cherubs a smile and a voice”

  16. Hi Lisa
    We are in the auK. My son is 3 yrs 10 months. He has moderate ASD. He is extremely verbal I suppose comparative to what he was. I have bought Equazen omega 3 and 6 children’s chews for him. I’d be grateful for some guidance on the appropriate dosage.. the container says “6 chews per day for the first 12 weeks.. followed by 2 chews per say”.
    Us there anything else I should be considering as a supplement?
    Many thanks

  17. Hi Lisa. Good to find this page. My 2 year old son isn’t talking except I tell him to say the word. Like ‘do u want water? , say water’ then he says it. His dad stutters alot so we are thinking he might want to do that too. Would giving him this oil be of any good? I want to start him up on the pro EFA 369 . Do I need to add the ProEPA as well for better result?

  18. Hello,
    First of all thank you so much for all these resources! My almost 3 year old boy has apraxia of speech and although he has been taking DHA for children only the last 2 weeks we are seeing so much improvement! We are amazed and so happy to finally hear him saying more words and expressing his wants and needs.
    What is the difference between DHA for children and PROEFA 369? They are both from Nordic Naturals. We haven’t tried PROEFA yet…should we instead of the DHA?
    Also, should we start giving him vitamin E too?

    Thank you so much for all you do!!!

    Best,
    Luz

    • Hi Luz,

      Children’s DHA from Nordic Naturals is cod liver oil. Any oil made from the liver of the fish naturally contains vitamins A and D. You would need to be careful with higher dosages of fat soluble vitamins as they store in the body Fish oils not made from the liver of the fish do not contain fat soluble vitamins.

      In addition to the fat soluble vitamins, cod liver oil tends to be higher in the Omega 3 DHA vs the Omega 3 EPA and I found formulas higher in EPA to DHA to be more effective. Also, I found a small amount of the Omega 6 GLA to be key too for some reason. I share this on this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      I do not at all recommend taking vitamin e along with fish oils. There is no evidence to support it, and instead, we’ve had a number of reported side effects from vitamin e supplementation -many fish oils contain a nominal amount of alpha tocopherol for stability (maybe 15 IU per capsule) and that’s OK. Avoid any fish oils mixed with high levels of vitamin e or supplementing it separately.

      The dosage of EPA, DHA and GLA I again have on this page http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      Lisa Geng
      President CHERAB Foundation
      cherab.org
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      getIQed.com
      772-335-5135
      “Help give our cherubs a smile and a voice”

  19. Hi Lisa.My son is 19 month old with suspected autism.We are in the uk.I started giving him Nordic Naturals complete omega 4 months ago.So he has about 307 Epa and 225 DHA.I read carefully the dosage on your website and I would try the eye q equazen.with 558 mg Epa abd 174 mg DHA but I want to ask of it’s not too much for a 19 months old.thank you

    • Hi Carla,

      The EyeQ is a great formula for you to be using. As you are in the UK it will be cheaper for you than the NN ProEFA 369 and I know parents that tried both and found them comparable. I cover this here http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      If you started already -would love to hear your updates!

      Lisa Geng
      President CHERAB Foundation
      cherab.org
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      getIQed.com
      772-335-5135
      “Help give our cherubs a smile and a voice”

  20. I forgot to mention that my son started babbling after the nordic naturals but still has no words and has to be seen by a SLT. This is the reason that I think a higher Epa would help him I am just a bit scared not to be too much for a 19 month old

    • Hi Carla,

      Since it was a month ago you asked this -let me know if you have any updates prior to me answering more. Thanks! And awesome that it sounds like he’s what I call a “responder” 😀

      Lisa Geng
      President CHERAB Foundation
      cherab.org
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      getIQed.com
      772-335-5135
      “Help give our cherubs a smile and a voice”

  21. Hi. I’m just looking into this. My son is 5 and half ASD non verbal (started saying single words in the last few months after i started giving him omega3, multivitamin, vit b12 now also). After reading through this i can see you recommand proepa and proefa and my question is would nordic naturals complete omega 369 that has omega 3s 1310mg (EPA 615mg and DHA 450mg) omega 6s 500mg (GLA 170mg) omega 9s 500mg (OA 400mg) be a suitable substitute for those? Seems reasonable just need an opinion. Thank You in advance x

    • Hi Nat,

      When it comes to fish oils more isn’t always better -it’s all about formula. Have you seen this page? http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/

      I also recommend doing one thing at a time so you can see what is doing what. This was my son Tanner’s updates when I started him on just fish oils (all other variables were the same) http://pursuitofresearch.org/2011/10/27/tanner-gengs-the-lellow-breakthrough-for-apraxia-the-lcp-solution-book/ So my point is it ‘may’ be just the fish oils that helped your son. Only one way to know. And it’s good to know because any drug or supplement has a risk of a side effect. Fish oils would be one of the exceptions as there are literally tens of thousands of studies to support its safety and efficacy and has been used in dosages as high as a tablespoon a day for generations

      I also recommend stopping what you think is helping for a few days so you can note if there is any regression off.

      Lisa Geng
      President CHERAB Foundation
      cherab.org
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      getIQed.com
      772-335-5135
      “Help give our cherubs a smile and a voice”

  22. My daughter is 17 monts old.she babbles but does not have any clear words yet.l bought some nn proefa369 and nn proepa capsules.what is the dosage you recommend for her.please answer me as soon as possible because i am so excited to start the combo.thaks a lot.

  23. Hi Lisa,

    My son is 27 months old. Along with his pediatrician, I strongly believe he has verbal apraxia. In addition to speech therapy, I am interested in starting diet supplementation with fish oils. I have read over much of the information and research presented on the Cherub Foundation’s web page. I wanted to try the recommended formula of 2 capsules of NN ProEFA369 and 1 capsule of NN ProEPA. Would it be too much to use this formula in addition to the one serving of the IQ powder for him?

    PS: It occurred to me after doing some research that I began seeing signs of verbal apraxia when my son stopped using his infant formula (enhanced with DHA) at 14 months old. Almost, immediately after stopping his DHA enhanced formula, there was loss of intentional words.

    Thank you for your research, commitment and caring.
    Renee from NJ

    • Hi Renee,

      I believe it’s best to start with just the one capsule of NN ProEFA 369 -it’s a great start formula http://pursuitofresearch.org/2016/09/13/dosage-of-fish-oil-for-children/ Not because the combo is too much for a 27 month old, but because I believe it’s best for us as parents to see exactly what is doing what. To see changes with just what would be 1/4th a teaspoon of fish oils is amazing. According to Dr. Stordy’s research about 80 something percent are responders, and that seems right from close to 20 years of feedback from outreach. If your child is a responder you typically will know within a day to 3 weeks- here’s my son Tanner’s story from Dr Stordy’s book (he was not part of her research -I read about it online prior to her book being published) http://pursuitofresearch.org/2011/10/27/tanner-gengs-the-lellow-breakthrough-for-apraxia-the-lcp-solution-book/

      Then increase to 2 capsules of NN ProEFA 369 -and then add the one NN ProEPA. Within the first month or two -try stopping the fish oils (whether you think they are “working” or not) and observe for a regression. And then start them again and see if you note another surge. That’s when all of us really know what the fish oils are doing! I’m pretty confident they’ll work for you too as they do for most.

      IQed is my product that I developed for my own son. I am not allowed to make any claims on IQed until we complete research to support claims other than saying it’s superior nutrition that the food ingredients in it are known to support healthy brain and metabolic function. All ingredients are certified as healthy foods and tested free of heavy metals, hormones, pesticides and herbicides, stimulants, preservatives, genetically modified ingredients or synthetic contaminants. Even though there are Omega 3s in IQed- I haven’t yet figured out how to get them high enough in DHA and EPA without IQed tasting or smelling fishy once added to liquid or food. So as it says on the FAQ page now -fish oils are recommended with IQed still https://getiqed.com/apps/help-center

      This is a back to school blog I just wrote for IQed https://getiqed.com/blogs/food-for-thought/iqed-smart-start-for-back-to-school I know you are almost a year away from having to think about back to school (if your child qualifies for the IEP) but you may appreciate it as times moves quickly! At your child’s age you’d only need a scoop or two a day- and you can share with his pediatrician or neurologist- I worked with an award winning pediatrician on IQed https://getiqed.com/pages/meet-our-team and I highly recommend it and love it!

      If the SLP suspects apraxia as well, I highly recommend you get an evaluation by either a pediatric neurologist or developmental pediatrician to confirm or rule out soft signs http://pursuitofresearch.org/2014/07/29/parent-friendly-soft-signs/ Do you notice any signs on this page?

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  24. Hi Lisa,

    Thank you for your response! My son is currently receiving PROMPT therapy by his SLP. It sounds like she also believes he is apraxic. We will be going to a developmental pediatrician also. I looked over the soft signs. I do see many- low oral tone (unable to blow bubbles or blow out a candle, doesn’t truly pucker), poor sleeper, high pain threshold, some sensory seeking but not habitual or OCD like, ( from 17 to 24 months he was a high oral seeker on all paper, but that has stopped). In addition, he does have tendency to over stuff his mouth (although it’s improving greatly). There are also some delayed fine motor abilities such as poor distal grading of the wrists and hands (stacking blocks is hard and the shape sorter took a long time). My son started pointing at 21 months and waving at 23 months, which is quite late. I’m also watching for auditory processing delays. I am pediatric school based physical therapist, so I’m watching everything! Other than that, he is a beautiful, happy little man, who has super strong social relationships and is loving life other than the frustration to communicate at times. So, we will get through this…I can’t tell you how much I appreciate your story and resources. It is really helping me in so many ways.

    I am also reading The Late Talker book. I just read the part where you mentioned your son demonstrated regression after having a viral infection. Around the time when we stopped formula, saw a loss of the two words he had (car and cat, un prompted), my son and I both had cox sacci virus. Though your personal experience, what roll do you think if any the virus played? Has any of those you’ve worked with ever seen a similar timeframe or connection?

    Thanks so much
    Renee

    • Hi Renee!

      I ‘think’ I just answered you on another message. Oral apraxia is not that common but it’s easy to diagnose and you are mentioning some of the classic signs of it Read this over http://pursuitofresearch.org/2017/02/03/why-more-should-know-what-oral-apraxia-is/

      PROMPT is an excellent therapy to address a motor planning impairment, the issue is that apraxia today is rarely just a motor planning impairment, and it’s also typically not just limited to the face/mouth -as you are noticing we are seeing a global presentation. So it’s awesome you have that appointment with the developmental pediatrician. Either a developmental pediatrician or a pediatric neurologist can help spot the global soft signs.

      I highly suggest prior to the evaluation by the MD to take various short videos of your child in typical situations. Playing, eating, trying to communicate etc. The day of the visit he may not be himself, and you want the doctor to see how he normally is.

      I did share on the other link about fevers and regression, in the literature, there is more evidence linking an impaired immune system during pregnancy to more severe autism. I understand that is during pregnancy and autism, however, with the lack of research for apraxia I tend to pull from existing literature to see how it may affect our children with apraxia (the true silent majority I call them)

      Does your child take fish oils? Here is a page which sums up 18 years of WHY I think you should look into them http://pursuitofresearch.org/2017/10/04/discovery-of-an-apraxia-protocol/ I don’t have this on there but believe that the fish oils help with the immune system too https://www.ncbi.nlm.nih.gov/pubmed/11724453

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

  25. Hi Lisa,

    Yes there have been many soft signs. My son use to oral seek and chew paper and mouth many objects in addition to over stuffing food between 17-24 months. After 24 months, this improved dramatically after quite a bit of work (reflex integration, redirection). There is decreased fine motor grading, and some decreases planning skills. Pointing started at 21 months, waving at 23 months. He is not a great sleeper either. He is not able to blow a horn or bubbles and not yet mimicking to stick his tongue out of his mouth (like a snake). I do believe he is a responder. In the first week, I am hearing more variation in babbling and new sounds. I also heard the resurgence of the word car, which I haven’t heard in several months.

    I am reading the book The Late Talker. I was interested to read about your son’s regression after a viral infection. My son had cox sacci at 14 months, around the time that typical language development seemed to stop. Have other people in your path experienced this?

    • Hi Renee,

      I recommend you look into oral motor therapy which is a therapy skill some SLPs are trained in. It’s unfortunate that when your son was having some of the soft signs early on that his SLP didn’t pick up on the need for that, but it’s at the same time apparent that his current SLP is not trained in oral motor therapy -not all are. Here is some information to help http://pursuitofresearch.org/2012/07/22/oral-motor-dysfunction-exercises-and-therapy-for-autism-and-apraxia/ Also you’ll want to look into oral apraxia http://pursuitofresearch.org/2017/02/03/why-more-should-know-what-oral-apraxia-is/ as you are sharing some classic signs of that. I’d highly recommend a second opinion. If you are in the US there are numerous SLPs to choose from and if you are paying private search for best- because most of them are super nice and they all pretty much know basic speech therapy. Through early intervention and the school your child is only entitled to what is appropriate -but again you can pay privately for best You also don’t have to go to the one that just happens to be the closest to your home even though that is preferable -but even if you have 2- one who is more of an expert that is further away and to help with diagnosis (think you need that) therapy, helping to set short and long term goals and monitor and oversee progress -and then someone who is meh that is closer that can follow the directions of the better SLP Here are some ways to secure more therapy low cost http://pursuitofresearch.org/2016/05/31/5-ways-to-get-free-or-affordable-speech-therapy/

      I wish I could tell you more about the regression Tanner had at 11 months prior to his regression. I do know however that it’s far from rare for our children to have a fever and then regress. Unfortunately, I don’t believe there is any research in this area -but very little research for apraxia. In autism there is a link between fevers and regression into autism

      “Thus far the evidence seems to indicate that fever, if anything, is a risk factor for autism. Maternal influenza and fever during pregnancy proved to be risk factors for the later development of autism in the CHARGE study (Ousseny Zerbo et al.). In some cases autism seems to develop more often than it should after febrile seizures. Also in certain inherited conditions, e.g., mitochondrial disorders, fever may mark a regression into an autism phenotype.

      The deleterious effects of fever on the nervous system have been known for a long time.”
      https://corticalchauvinism.com/2015/07/06/fever-and-autism/

      Lisa Geng
      President CHERAB Foundation
      Communication Help, Education, Research, Apraxia Base
      Conceptualist for IQed “Approved for the Feingold Diet”
      772-335-5135
      “Help give our cherubs a smile and a voice”

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